For my family, friends, business associates and all combinations

If you meant to come to the blog for Harry Andronis, you're in the right place. If not, welcome anyway. Since the beginning of my back problems in 2007 I have received calls, e-mails and letters of support. I have been given help from around the world. I am amazingly lucky to have such caring and loving people in my life. I cannot begin to tell you how much strength and drive it has given me. While the back surgery in February 2008 worked like a charm, it turned out to be the least of my problems. Continuing weakness in my legs and hands after the surgery led to the diagnosis of ALS (Lou Gehrig's Disease) in May of this year.

Due to the progressive nature of the illness I am finding it more and more difficult, physically, to type on a keyboard or talk on the phone. Hence, this blog. I will try to update on a semi-regular basis. I do not want to discourage contact. It is just becoming harder to always respond in a timely fashion. As you might imagine, some days are better than others. I'm not sure what I want to say or talk about. At times there may be more detail than you'd like but we'll see. I hope you'll follow along, send the good vibes, have a look at the gallery and the people or things in it, maybe leave a comment and keep those calls and letters coming.

I do want to acknowledge the unwavering support from my giant core of family/friends. You know who you are. I can never thank you for all that came before and now, or tell you enough what you mean to me......... forever.

By the way, read nothing into the color of the page. I like black. One of my favorite Zappa pieces is "The Black Page". Besides, "How much more black can it be? None... none more black." - Nigel Tufnell, 1980

Onward and upward..... h

Monday, July 21, 2008

Experimentation

Since there is no consistently successful treatment for this disease, at this point, there ARE lots of alternative options. I am getting ready to start one. It involves a 5 day protocol of an IV drip. I will let you know how it goes. I am waiting until after my state disability hearing this coming Wednesday. I am appealing the start date. Currently, my start date is March of 2008. I wanted to backdate it to November, which was after the last time I could work. Ahhh, bureaucracy..... Anyway, once that's done it's on to Social Security and Medicaid. WOOHOO!!!!
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