For my family, friends, business associates and all combinations

If you meant to come to the blog for Harry Andronis, you're in the right place. If not, welcome anyway. Since the beginning of my back problems in 2007 I have received calls, e-mails and letters of support. I have been given help from around the world. I am amazingly lucky to have such caring and loving people in my life. I cannot begin to tell you how much strength and drive it has given me. While the back surgery in February 2008 worked like a charm, it turned out to be the least of my problems. Continuing weakness in my legs and hands after the surgery led to the diagnosis of ALS (Lou Gehrig's Disease) in May of this year.

Due to the progressive nature of the illness I am finding it more and more difficult, physically, to type on a keyboard or talk on the phone. Hence, this blog. I will try to update on a semi-regular basis. I do not want to discourage contact. It is just becoming harder to always respond in a timely fashion. As you might imagine, some days are better than others. I'm not sure what I want to say or talk about. At times there may be more detail than you'd like but we'll see. I hope you'll follow along, send the good vibes, have a look at the gallery and the people or things in it, maybe leave a comment and keep those calls and letters coming.

I do want to acknowledge the unwavering support from my giant core of family/friends. You know who you are. I can never thank you for all that came before and now, or tell you enough what you mean to me......... forever.

By the way, read nothing into the color of the page. I like black. One of my favorite Zappa pieces is "The Black Page". Besides, "How much more black can it be? None... none more black." - Nigel Tufnell, 1980

Onward and upward..... h

Wednesday, July 30, 2008

State Stuff

Still haven't heard from the appeal hearing but, went to Medicaid office yesterday. For those of you uninitiated to bureaucracy here's a quick primer. After filling out 20 pages of stuff and supplying them statements on everything in my life back in January for my surgery, I was denied and the case closed. Now, they can't use that info again, you must start over. But they also needed my Social Security card, which I haven't seen since I was 15. They won't accept anything else, like tax returns or passports or driver's license but, they will accept......... a receipt that says you applied for a new card. The Social Security office will give you a new card if you show them.................. a passport and driver's license.
You go back with your 20 pages of stuff and documentation to Medicaid office and they want to see.............. your passport and driver's license as well as everything else. Then, just when you think you've complied they hand you another 8 forms that you need to fill out while you're in a wheelchair sitting at a bank teller-style window. I had my niece and brother with me so that made it somewhat more tolerable. Once we have filled out those forms, they want to see new documentation to answer questions for info gathered from.......... the unusable original application. It was at this point that I asked, " If we couldn't use the previous application, how do you get this information"? I was stared at.
In the end , we got through it. Now, it was on to fingerprints. I had to go to the bathroom first so
in I go and............... EARTHQUAKE. It was a minor one, as these things go but, strong enough to empty the building and we waited on the sidewalk. 30 minutes later we were back inside, I was printed and now await acceptance or denial. And that's how that stuff goes.
In the meantime, I go to a clinic tomorrow to try the 'treatment' and see what happens. tune in tomorrow.......

2 comments:

Martonia said...

Two words: CREAMED CORN.

Love you.

(I know, that was four.)

Suzka said...

Harry do you have Dragon software? You speak and it types. Let me know if you want it and I will procure it for you - let me know PC or mac. Hang in there!